28 June, 2009

Become A Partner With The Patient Blogger

Last week I did a presentation alongside Kerri Morrone in a conference aimed at people from the pharmaceutical industry. We tried to get three main points in the presentation:
1) We're people first: not far from the concept of "Call Me Patient, Not Consumer" I wrote about a few months ago.

2) Trust is key in this space (arguably in all spaces) and it works both ways. An important step to build trust is to start humanizing pharma more. Pharma can humanize itself more in many ways: starting with putting a name and a face to the building, the company name and the stock; thinking of the patient as people (as just mentioned).

We may not be getting hit by a hurricane every day but the cost of health care and the barriers to access to care make it harder and harder for people with chronic conditions to get the care they need. Pharma should find creative ways to emulate efforts like P&G’s "Loads of Hope" initiative to help Katrina victims with their laundry after the hurricane – so many people need help today.

Can you make patient assistance programs easier to find? Easier to enter? Broader? Things like these could go a long way to help build up trust from people towards pharma. A place to start may be to mine your organization for stories of people working in pharma because they were driven from within by a personal connection to a particular condition.

3) Adverse Event data is a good thing: Adverse events (AE) seem to be the elephant in the room most pharmaceutical companies are running away from when it comes down to working with online communities and patient blogs. Not engaging patients may save pharma the "trouble" of dealing with AE but it also results in missing opportunities for dialog.

Here is the presentation:

Mazinger Z y Koji Kabuto

Hoy vi una serie de episodios de Mazinger Z junto a mi hijo. La verdad es que era una serie bien basica comparada con los manga de hoy en dia, pero me encantaba. Aqui tienen un videito para rendirle tributo al gran Mazinger y Koji Kabuto:

24 June, 2009

Interesting Uses of Ning in Education

I recently asked the tweeple following @ningfordummies about creative uses they have for Ning in Education.

Here's what some of them replied:

From @imaginedpm
Using the ning to develop and share new curriculum across different educational institutions & other stakeholders.

From
@RIFWEB
Here's how RIF uses Ning to educate: http://www.airspace.ning.com

From
@bethanyvsmith
I did my thesis on using ning in a distance ed class for class discussions

From
@jmiscavishhttp://lhshonorsla9.ning.com/ http://lhscreativewriting.n... how don't I use it in edu?
... and you probably knew about this one, but I frequent the english companion ning: http://englishcompanion.nin...
... and well, too. I'm running my summer reading program through the ning groups right now.


How about you? What
interesting uses you are making of Ning in education? If you choose reply @ningfordummies on Twitter, please include the #ningedu hashtag.

15 June, 2009

Oxfam America Raises Funds to the beat of Sigur Ros

The Global Hunger Epidemic from Oxfam America on Vimeo.

06 June, 2009

Tribes: Unimpressive and lacking substance

I don't consider myself a fan of Seth Godin, but I have enjoyed many of his books. When I saw a video of him talking at TED Talks recently, I decided to order Tribes. The truth is that the book was more than adequately summarized by the speech he gave @ TED.

Beyond that, I cannot help but agree with the reviewers that point out the lack of substance in this work by Godin... By the end of the book, you are inevitably left wondering why did he need to publish an entire book about it. There's really indeed an unfortunate lack of substance in Tribes.

Instead, I recommend The Dip: A Little Book That Teaches You When to Quit (and When to Stick) and Purple Cow: Transform Your Business by Being Remarkable.

02 June, 2009

Clay Shirky speaking at NTC 2009

01 June, 2009

Ning for Dummies Daily Twitter Giveaway: Over!

One lucky person was be selected every day as the winner of a free copy of Ning For Dummies, between May 26th 2009, and June 1st, 2009.

The daily winners were be posted on this blog entry and @ningfordummies.

Congrats to every one of the winners and thanks for such a fun giveaway!

Winners: Ning for Dummies Daily Twitter Giveaway

UPDATED: June 1, 2009 @ 9:00 pm PT

In this post, I have included the daily winners for the Ning For Dummies daily Twitter giveaway:



Two of the winners have not yet responded with their mailing address, so the final list may change by the end of the business day tomorrow if I have gotten no word from them.